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fibromyalgia

Ican'tcryanymore
Here since: Feb 13, 2007
Female, 41
Homemaker, mother, wife
Raleigh, West Virginia, USA
Languages: English

Please, help me and my family, want to keep my family together

Hello,

My name is Connie. I live in rural West Virginia, USA. We want to move where there are better jobs and opportunities some day, but it costs to move. Also warm weather might help my pain, like AZ maybe? Never been there, so don't know for sure.

Right now we need some help. Going to have to file bankruptcy due to all our medical bills. We can't even get the money together now to do this. We are trying. We could lose our house, it is not even paid for.

I have been praying for help. I don't know what to do. Please if anyone can help in any way. I have been married 20 years and I am 40 yours old. I just want to keep my family together. This has almost caused my husband and I to get a divorce. I am so lonely. I don't know what to do. I have always been the one to help or do things. Now I can't do it for myself or anyone.

I will try to keep it short. We have 4 people in my house. I have Fibromyalgia and have been sick with one thing or another a long time. Just got some heart tests I had to have done. I was recently in the hospital for 5 days. I am depressed and so is my husband.

My husband works full time, but his hours got cut by one day. He is looking for another part time job and doing the best he can. WE have awful  health insurance, it is almost like having no insurance.

We are cutting everything out we can.

We have had so many health issues come up with mostly me, some with my husband and our daughter. Our daughter is 19 but has narcolepsy and stays very tired . She is taking her College studies at home on the Internet. We have another 19 year old that lives with us and he is working 2 jobs now and goes to College. One is about 30-40 hours and the other 15-20. This is what you call the working poor I guess?

I can't work right now due to health reasons. I do not have enough credits to apply for disability. I am lost as to what to do.

Any help or ideas appreciated. I don't have anything of value to sell or I would do that. I am so grateful for my family. I pray we all can stay together. I am doing all I can do.

Thank you for taking the time to read this. God Bless. I feel bad asking for help, so many need help. It is hard to ask for help. I used to be the one to help. My email address is

 lynn-connie@yahoo.com

Connie

 

Fibro Viv
Here since: Jun 16, 2007
Female
Disabled
USA
Languages: English

Allow yourself to share your experience with this invisible illness and help yourself and others too. Share your tools, how you deal with everyday life, and gain access to information on Chronic Fatigue and Immune Dysfunction Syndrome and Fibromyalgia (CFIDS/FMS). MY MISSION is to empower patients to take control of their health by providing my own story and experience with treatment information, quality health products, community, and advocacy.

I have changed my post because someone on this site tried to scam me.  I started to delete everything, but decided I want to share information about Fibromyalgia and Chronic Fatigue Syndrome.  Why should everyone else suffer?

The individual who mislead me will have to live with that.  I still want to help people.

hopeful_gal
Here since: Apr 19, 2007
Female, 39
Struggling Sole Proprietor of Web Design Biz
Small Town in SE Part of State, Wisconsin, USA
Languages: English
Hi Fellow Helpers,

I'm uncertain how this site works, so if I make a mistake or make a wrong request, please let me know. I'm a little shy about putting up a picture of my face - so I put this one up instead. It is embarassing to have these sorts of financial and physical problems and putting up my picture for all the world to see at the same time.

My reason for being here:
To seek help in finally securing my own place to live, here in the USA, in the state of Missouri. I don't care if my house is super tiny - but I want something that is all mine.

How much total money will it take?
$30,000 for a very small house, on a tiny piece of land. (taxes are more affordable on a small house!) But any amount would help me get there - even $1 would be a step in the right direction.

-> Click Here to Make Donation with PayPal


How do I know this enough money?
I know Missouri well and really like it there. An added bonus is that I have a few friends there already, so I won't be totally alone.  When I visited there, I checked out pricing to make sure this would work out. I came up with 2 ways of making the money stretch far enough:
  • (BEST Option 1) There are always about a dozen small older houses for sale in this price range (fixer-uppers, older neighborhoods) in a couple towns there. This would give me the most living space for the money - although it would need some repairs for that price
  • (Other Option 2)   If necessary I will consider buying a used trailer home and buying a piece of land to put it on. I'm a bit concerned about the safety of this sort of home especially in that tornado prone region. Plus, friends of my boyfriend bought a used trailer, and they spent twice as much on repairs to make it safe ... so I'm not excited about this option - but it would be better than nothing if all else fails.

About me:
I am a small woman with Fibromyalgia - which is a disease which is not cure-able. If you don't know what it is: imagine feeling pains like when you have the flu - muscles and joints are sore almost all the time - those pains are a daily experience with fibromyalgia ....  migraines come frequently, serious stomach problems occur frequently, sleep disorders cause such poor sleep that you really almost never get good rest, and light and sound are almost unbearable in the mornings. Fibro also causes my muscles to twitch and spasm. The fibromyalgia also makes me extremely sensitive to products and medicines - which can give me hives, excema (sp?) and rashes. Serious depression is common among sufferers of Fibromyalgia - and I'm no exception to that. (Mornings are the worst for all of my symptoms! - things can lighten up in the afternoon if I take it easy) I'm working very hard to control all my symptoms and am showing big improvement compared to last year.

Due to my illness, and an injury that I sustained 6 years ago (back injury from accident - finally healed that!) I ended up living with my relatives. I had to get rid of almost all of my possessions and my beloved pets and horse. This is a highly painful living arrangement due to the emotional and verbal abuse I endured here as a child, and continue to endure now that I'm back in my relatives daily lives. It is unbearable not being able to have pets in this house. I know that sounds small - but I feel I'm dying of loneliness here.

How am I trying to fix this:
Before I got hurt and ill -  I had started my own graphic design business. I designed product catalogs, did photography, and designed web sites for small businesses. I was making enough to get by. Then 6 years ago I suffered injury and illness. NOW, I am restarting my efforts of working and getting clients - but focussing on web design only. (I really can't afford all the equipment and software to do everything else right now to do photography and product catalogs anymore - so web design is enough for me right now). I am contacting businesses and trying to secure them as clients. Working for myself is the only option for employment - because of my illness. I am ill so often that any employer would be frustrated with me having to call in sick too often. But by working for myself, if I need a break because of illness, I take one - and then get back to work later the same day or night.  It is slow going - but I know I can eventually get there. But .....

Here's a problem:
I am having a very hard time fighting the depression and dealing with the extremely abusive situation I am living in. If I could get into my own home, I could work so much better, I could feel healthier, and have a life instead of feeling hopeless and alone.

Can you help me?
Any amount of money (even $1), or ideas, or you could hire me to design for you, would be so appreciated.  I plan to put all money into a savings account until I get enough to get my house. Can I do it before the end of 2007?

Thanks for listening.

PS: If you would want to hire me to develop a web site - that would be wonderful!

Any Donation (Even $1) Gratefully Accepted. (Made Via PayPal)




everlastinghope
Here since: Sep 1, 2007
Female, 21
Student
Green Bay, Wisconsin, USA
Languages: English

I am twenty one years old and affected by many problems. Although I have great internal stregth, I have come to realize many employeers do not care about how well you preform on a job if you cannot guarentee them constant employment. I have over come so much, but now I have reached a mountain I need help climbing. Any help, whether it be help financial or direction on how to pay this off even though I do not qualify for debt cancelation.  Please, whatever you can do to help would be appreciated. I don't want to thrive, I just want to survive and I am barely doing that know. I have listed them here, in hopes that others can understand why I have come to this point. I want to thank my friend who helped me to type this and edit it.

Autism

            It affects my ability to communicate well or clearly with others because I have few social skills. I am not able to understand or interpret nonverbal communication, tone of voice or much of which is not stated bluntly. I need to have a constant routine to limit number of meltdowns that occur. My other disorders also affect the symptoms of autism and how severe they are. The worse the other disorders are affecting me, the worse the autism seems to be.

            Sometimes I ‘zone out’, meaning that I do not hear what is going on around me; does not happen as much as it did. I have a hard time expressing myself verbally because I seem to think differently, and so therefore, I do not know how to express what I am thinking clearly and in a way others will understand. I also have a hard time understanding what others are saying all the time, this depends on how much is said at once, the complexity of what they are saying and how well I know them.

            I do much better typing and writing things out for some reason. It seems to be the best way to clearly explain myself and what I am thinking. It also does not help when there are a lot of noises or activity going around because of the fact I have problems filtering out those things and concentrating on what someone is saying or what I have to do. I have problems controlling the tone of my voice and the volume of it since I cannot judge how loud I talk. Also, at certain volumes or pitches, noises can hurt my ears. Sometimes I can deal with this problem, but not always.

            When under a lot of stress I have a tendency to rock or tap my foot up and down rapidly, causing me to leave or  take a break from what I am doing to calm down; if I cannot do this, I have to leave because it is a sign of anxiety, being overwhelmed, stressed out, etc. and could mean a meltdown is possible if I do not get out of whatever situation I am in.

Sensory integration dysfunction

            I am extremely sensitive to smells, sounds, textures. This means that I cannot always deal with the outside world because too much is going on. I have a hard time concentrating if there is background noise when someone is speaking.

Body Awareness


            I am not good with balancing, coordination, am very clumsy, run into things a lot, run into people. I have a hard time judging distances and figuring out where things are in relative to myself.

Depression

            Mostly occurs during winter months or bad weather. It causes me to want to withdraw and makes the autism and anxiety problems worse. Makes me very tired and may cause some of my sleep problems.

 

Anxiety

            Sometimes am unable to deal with the world and have to stay in my own space or suffer from panic attacks where I feel like I cannot breathe, am very dizzy, headaches and feel like everyone is watching me and things are about to happen. An unusual fear of failure and messing up occurs often. Often feel the need to be a  perfectionist so as not to be noticed by others which results in a lot of stress, as well as frustrations and exhaustion.

 

Poor Bone Structure


            This is in my legs because my bones did not form right or align correctly. It is easy for my joints in my legs to give out or do something that causes me to fall or almost fall. Causes pain.

 

Fibromyalgia

 

            I have wide spread pain through out my body, making me some days unable to move or move well. Cold and bad weather makes this worse. Sometimes I cannot walk because my legs are like jell-o (don’t think this is part of Fibromyalgia). Some days are better than others. I have days where I feel as though I am moving through a fog because I have trouble thinking and such. During a flare up last school semester (last two or three weeks) I did attempt to go to school, but once there, I could not remember where my classes were.

ADD/ADHD

 

            I have a hard time concentrating and staying on task. I also believe this is why I have major problems with organization and need to been doing something at all times.

Organic Mood Disorder

 

This is actually bipolar, the only difference is that it means the bipolar disorder was caused by something else in the brain (in this case, autism)       

This causes my moods to go up and down, sometimes very quickly. Medication does help, but some days am very easily frustrated which make it impossible to deal with normal things. At this time, I either have to stay inside my apartment or risk blowing up or not being able to function outside in the world. I do not believe I have the rapid-cycling anymore (my mood could change in minutes), but my moods can still shift from hour to hour. I have to be very attentive to what is stressing me out, overwhelming me, and try to control things that bother me to stop this from happening. This stops me from always being able to lead a normal life because I cannot deal with as much as others can. It also affects how much the sensory integration dysfunction affects me, as well as how bad my sleep problems are. This is separate from the depression diagnoses because of the fact that I experience depression on a seasonal bases, although I do take an anti-depression year round so that the depression episodes are not as severe. On top of this, I do experience the normal times of feeling depressed and than switching to feeling very hyper.  If it is during winter months, that is when the depression is at its worst.

Sleep Problems

            I suffer from insomnia and the medication for restless leg syndrome seems to help me not feel like moving. The insomnia causes me to be unable to sleep sometimes, despite not sleeping for over twenty hours at times. Also been told I have border line sleep apnea. Lack of sleep makes other problems, such as the autism, sensory integration dysfunction, depression, ADD and anxiety worse
Blended Hope
Here since: Dec 5, 2007
Female, 39
Non-profit administration
Languages: English

Hi, my name is Kerry and I have 4 daughters.  They are 4, 6, 6 and 16.  About a year and a half ago, I left an abusive marrage to try to make a better life for me and my girls.  Things have been pretty rocky since then.  My ex is refusing to let me go and refuses to sign any of the paperwork.  He is trying to get custody of the girls and calls children's services on me all the time.  (The ladies from there are WONDERFUL!  I have nothing but good things to say about them, and they have always quickly closed the cases, but it is a horrible abuse of the system on his part and keeps them overworked and is a form of harrassment). 

 Anyway... I work two jobs.  One in the morning and one in the afternoon so that I can get my twins from school and take them to the daycare.  This also allows me to take them to the councelor's apointments and lets be be availible to go to the school when one of them is throwing a temper tantrum (hey.. Daddy throws things when he's mad, why can't I?).  Anyway, this means that I currently don't have health insurance.  I take a drug called effexor for Fibomyalgia (which is a disease that causes chronic pain).  It is $140/month at half the dose I'm supposed to be taking. 

I've never been in the position of not being able to give my children something for Chirstmas.  I don't have any family (my Mom died 2 years ago) and I dont' have any credit cards.  I do make fairly good money and their Dad is currently working and paying child support, but at the moment, I have to pay my lawyer, and the court appointed Gaurdian and every time he calls Children's Services or some other authority on me, it costs over $1,000 for me to clear my name and pay everyone to investigate something that didn't need to be investigated.  (sigh)   

I'd like to give them some art supplies this year.. we color and paint and craft all the time.  If anyone has some extra art supplies, material or yarn, would you consider donating them to us for their Christmas?  

Thanks for your kind thoughts,

Blessings,

Kerry 

 

 

hippygirl
Here since: Aug 9, 2007
Female, 36
Social Work
Kansas, USA
Languages: English
Single mon in need of immediate financial help.
I am a single mother of two boys. I have been unemployed since November of 2006, due to the fact that I have fibromyalgia and cannot do just any kind of work.  My unemployment has run out and my parents can no longer afford to help me.  School is getting ready to start and I can't afford rent, school supplies, or school clothes for my kids.  I am at a point where I just don't know what to do anymore.  I am in need of about $1500 in order to get rent caught up and get the school supplies and clothes my children need for school. I don't get child support for my children since their father can't be found so I am out of options. If anyone could help, even a little, it would be greatly appreciated. When I am back on my feet, I will be right back here to help who I can. I know that if I can get help, I will be glad to help someone else when I am able to. That is what God would have me do. God bless all of you even if you can't help me, I hope you will find a way to help someone less fortunate than you at some time. What goes around comes around. I never would have thought that I would be in this situation,but here I am. I just hope God shows me the way soon.
Thanks and God Bless!
Disabled College Student Graduating

Hi,

I am 21 years old and am gradutation soon from college. I went to college because I really had no choice. I am autistic, bipolar, and have fibromaligia (I have a few more, these are the main ones), so I needed health insurance. With no job experience and no knoweldge of any programs to help me, I took the college route.  Over the course of school, the Fibromyalgia

has gotten to the point where I have to use a cane and have been stuck in bed for two or three weeks in a row. I have only been able to come as far as I am school because of the willingness of the teachers and being able to sumbit homework online.
Now I am about to graduate and am over $13,000 dollars in debt. Even though my disabilities affect me so much that I cannot work more than 20 hours and although that has been documented by more than one doctor/professional, I cannot get government help because according to them, I am not disabled.
I have no idea why even though I have been getting assistance from the Division of Vocational Rehibiliation (DVR), and other disability help, such as disabled housing. Once I leave school, I will not have the finacial support of the DVR.
My parents are barly making it themseleves right now and they cannot help me at all. I have no idea what to do. I want to work so badly, but it is just not physically or mentally possible to do enough to survive, let alone pay off this debt.
Please, I normally don't ask for help, but I am scared to death of what will happen and this debt is just making things worse. If you could help me out at all, I would be enternally grateful. I cannot promise that I can pay money back, but one thing I can promise is that even if I am not able to find an employeer willing to work with me, I will be doing voluntary work, helping others.

booklady
Here since: Oct 13, 2006
Female, 40
Waterford, California, USA
I'm Robin.  39, married, mom of 3.  I love books, writing, and learning.  I have been very sick for the past few years, and was unable to walk, work, think, or enjoy life.  My illness totally took over my life.  Thanks to Dr. Paul Whitcomb and the Fibromyalgia Relief Center, I have my life back.  HOwever, the journey to wellness did not come cheap or easy.  My illness took it's tole on my business, finances, and family.  We are in extreme debt and have no where to turn.  Right now it is very scary, and I am very much needing help.  If someone can help please contact me. 
Desperately need help!!!

I am mother of seven, who has been diagnosed with fibromyalgia.  I am currently out of work; and able only to work certain jobs, that makes it that much harder to find one.  I had deposited two checks totally $5,000; not knowing they were part of a scam. The checks were counterfeit; I am now facing legal matters if I don't find the money to pay the bank back.  The bank says they will press charges if I don't get this paid back as soon as possible. (I don't understand, I became a victim in a heartless scam).  I have tried to find help, but none of my family are able to help me; they are having financial problems themself.  I don't know where else to turn to for help.  I hope there is someone who can help me and my family out of this. I am trying to get my life back on track, and I thought I had won the lottery, and so I deposited the checks, not realizing it has created a nightmare for me and my family.  My life in the last two years have been a long rough roads, with obstacle along the way.  With having fibromyalgia, I am finding that my decisions are clouded, and not real well thought out.  I am having to learn how to deal with this one day at a time, which is hard for my children.  If there is anyone that could help me to clear this matter up, I would appreciate it.  God bless.

I dont know what to do

I am so lost right now.  I swear I am on the verge of killing myself just to make things better for everyone around me.  I had a job I loved.  I was living by myself for the first time.  I met the most amazing person and we decided we would spend our lives together and have children.  Well I got pregnant, but I lost the baby 2 months later.  The doctor had to do a D&C and the moment I woke I my body was in so much pain.  Well since then (a year later) I feel the pain non stop. My doctor says it is Fibromyalgia.  I have not worked since June of 06 and I am in the process of filing for disabiliity.  I feel so bad because since then everything has gone down hill.  I knew we were struggling, but I did not know it was as bad as I found out today.  I would do anything in this world to make things better for my boyfriend.  He has been perfect and supportive through everything, but he cant handle the bills anymore. They have piled up too much.  We are about to move to my moms house.  Both cars are about to get repo'd, we are getting kicked out of our apartment and of course all the utilies are about to get shut off.  I just feel so bad.  All of this is my fault.  All because I cant work. Physically it is just impossible, but I am going to have to try.  I have been getting assistance from the state but its just not enough.  I am going to have to stop seeing my doctors and taking my medication and I am scared.  If I find a job and go back to work what is going to happen to my body?  How long will I be able to keep it up?  I dont think I can do it but I have no choice.  I have even thought about selling my body.  I just dont know what to do.  If I kill myself then I wont be an inconvience to anyone anymore.  But then I have left him behind to deal with all of this mess.  I just cant take this pain anymore. My body and my heart.  Please help me somebody.  I dont know what to do!!!

need money to fix car so i can get to dr

I'm a single mom of 5, on which Down Symdrom... I also have fibromyalgia and cant get to my dr apt. because my car is broak down and the tires are flat....Please if anyone know of some help , I would be forever greatfull

sapphire1968
Here since: Dec 7, 2007
Female, 39
unemplyed
Languages: english

Im 39 years old just been diagnosed with fibromyalgia.I havent been able to work or bring in a income.I have medical bills and bills just piling up.I found this program to help with my fibromyalgia,but I need about 900 to take care of my medical and presciptions for a year.I dont know what else to do.If anyone knows of any grants or help i could recieve I would be extremely grateful.Im checking account is overdrawn someone got a hold of my debit information and made a purchase and Im having a hard time getting it taken care of.Each day im in the negative they charge me and I need help please.Fibromyalgia is a nightmare and for anyone that doesnt have it your very lucky..Thanks for taking time to read this and hope maybe you can help me out..

calililies
Here since: Jan 15, 2008

I am searching for help with medical bills.  I have had three surgeries since December of 2006 for Endometriosis.  I also have fibromyalgia and severe depression.  I have collection agencies calling me everyday. I am a CNA and I haven't been able to go back to work since my first surgery.  I am not able to get any help from my family.  My mom is disabled and has limited income.  I have been trying to go to school but so far I haven't been able to keep my attendance good enough to pass very many classes.  I'm trying to get my LPN license.  If anyone knows anyone or anything I can do to get some help please let me know.  thanks  

Comment: So far, no luck as of yet....
Note: This aidpage was started as a comment on "Home page of everlastinghope"

So far, no luck as of yet. All the people I have contacted have stated that resources are for family of autistic children, there is not any programs out there for autistic adults. I did find a scholorship, but it would still leave me in a lot of debt.
Please, if anyone can help me out in anyway, I would appreciate it. I am just so desperate and scared.
Thank you to all those who have helped. To those also seeking help, I wish you all the best of luck.
God bless,
Amanda
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Any Help would be appreciated

Hello,

I am new to this and hope that I can find help.  I went through surgery on 10/19/07 to remove 2 fatty tumors in my groin.  I returned home and over the next few weeks developed severe pain in my groin and lower abdomen to the point I could not wear any clothing or have anything touching the area of the surgery.  I went back to the Dr. and had test after test and nothing could be found that would be causing the pain.  I started developing severe pain in my hands as well as lack of dexterity and ability to grasp objects.  I started having problems walking and standing and have recently been given a disabled status on my drivers license.  I went to a rheumatologist who found out that I have severe Fibromyalgia the criteria for diagnosis is 18 major trigger points she stopped counting at 25.  She also found that I had something called hyperesthesia a condition which the body recognizes any type of touch as pain.  They have also found that my pancreas is producing too much insulin and are debating whether to take it out.  I see a pain doctor who wants to install a spinal pump/stimulator to help with the pain.  I see a pain psychologist to help me deal with the depression this has all brought about.  I am now confined to my house I cant drive because of the pain meds not to mention the pain from grasping the steering wheel and pressing the pedals.  My wife does not understand this and wants a separation and this is where I need help.  My Job fired me because I could not return to work. I cannot work or make income and still waiting to see if I qualify for disability which can take another year.  I need help moving back to Virginia from Florida as well as the cost of housing in a handicap accessible apartment.  If anyone knows where I can go for this or is able to help please let me know.

Thank you and God Bless,

Tim

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